From March 12-14, blood disorder public health professionals and advocates from around the country gathered to take
part in the Center for Disease Control & Prevention’s 2nd National Conference on Blood Disorders in Public Health inAtlanta. The conference focus,From Outcomes to Impact: Addressing Translational Blocks to Improving the Public’s
Health—Disseminating and Improving the Adoption of Effective Preventive Measures and Therapeutic Interventions” included scientific sessions and workshops covering a broad range of blood disorder communities.
The team from the Steven and Alexandra Cohen Children’s Medical Center of New York presented several scientific sessions concerning Diamond Blackfan Anemia. Dr. Jeffrey Lipton, Chief of Hematology/Oncology and Stem Cell Transplantation at Cohen Children’s Medical Center was a Plenary Speaker for the March 13 Plenary II onPublic Health Approaches To Increasing The Recognition Of Rare Blood Disorders, addressing the topic of, Registries and Data Collection Systems for Rare Blood Disorders. Dr. Lipton also presented on DBA and its broad public health impact in the session on Pediatric Issues In Blood Disorders. Dr. Adrianna Vlachos, Head, Bone Marrow Failure Program, Assistant Prof of Pediatrics, Cohen Children’s Medical Center, and Dr. Johnson Liu, Associate Professor, Department of Pediatrics, Division of Pediatric Cohen Children’s Medical Center, also participated in the session on Frontline Perspectives Around Blood Disorders, with Dr. Vlachos presenting her abstract on Cancer Surveillance Defines Diamond Blackfan Anemia (DBA) As a Cancer Predisposition Syndrome and Dr. Johnson Liu presenting on his abstract Transitioning the Diamond Blackfan Anemia Patient From Pediatric to Adult Care.
Dr. George Buchanan, University of Texas Southwestern Children’s Cancer Fund Distinguished Chair in Pediatric Oncology and Hematology Director, was also a featured Plenary Speaker addressing Current Workforce Issues, Historical and Present Challenges, Barriers and Efforts to Overcome Them in the conference’s Closing Plenary.
It was a highly successful conference demonstrating the public health needs of the DBA community, the tremendous strides that are being made and the broad public health impact that will result with the improved understanding of the DBA and bone marrow failure
patient population including methods for improving each patient’s quality of life