Managing Your DBA Care Notebook

Managing Your DBA Care: A Notebook for Families

Whether you have Diamond Blackfan anemia (DBA) or you have a child with DBA, creating a DBA Care notebook to manage your DBA care is a good idea. The DBA Care Notebook was created by the CDC with the assistance of the National Resource Centers DBA Nurses and our DBA families. Click on the “Instructions” document below to get started.

• Instructions
• Contact Information for the DBA Medical Team
• DBA Doctors/Providers Fact Sheet
• Doctor Visits and Hospitalizations

Growth Charts

• Growth Chart for Girls – Birth to 36 Months
• Growth Chart for Girls – 2 to 20 Years
• Growth Chart for Boys – Birth to 36 Months
• Growth Chart for Boys – 2 to 20 Years

More

• Medication Log Sheet
• Laboratory Testing
• Transfusion Log Sheet
• Vaccination Log
• Resources
• Notes
• Binder Cover

How I treat Diamond Blackfan anemia

"How I treat DBA" By: Dr. Adrianna Vlachos & Ellen Muir RN, MSN, CNS   Blood, 11 November 2010, Vol. 116, No. 19, pp. 3715-3723. Prepublished online as a Blood First Edition Paper on July 22, 2010; DOI 10.1182/blood-2010-02-251090.